Parliament, Friday, 17 April 2026 – The Chairperson of the Portfolio Committee on Health, Ms Faith Muthambi, noted that 17 April marks World Haemophilia Day, a day observed globally to raise awareness about haemophilia and other inherited bleeding disorders.
This year’s theme, “Diagnosis: First Step to Care”, underscores the importance of early identification as the foundation for effective treatment and support.
Ms Muthambi emphasised that South Africa stands in solidarity with the international community in raising awareness and deepening understanding of haemophilia. “This day is an important one to remind ourselves of the daily challenges experienced by individuals living with the condition.”
Haemophilia is a bleeding disorder in which the blood lacks sufficient clotting factors, proteins essential for controlling bleeding. While individuals with haemophilia do not bleed any faster than others, they can bleed for longer periods, which can lead to serious health complications if not manged properly.
According to the World Federation of Haemophilia, the day of observance highlights the critical importance of diagnosis, the first and most essential step toward accessing treatment and care. The Federation estimates that more than three-quarters of people living with haemophilia globally remain undiagnosed, with an even wider gap affecting those with other bleeding disorders.
The World Health Organisation (WHO) has underscored the need for comprehensive care for individuals affected by haemophilia. Its guidelines emphasise the importance of consistent access to appropriate treatments, particularly clotting factor concentrates, which are vital for significantly improving quality of life.
Furthermore, the WHO highlights the importance of education and awareness in promoting better understanding among healthcare providers and the public. This is essential to reducing stigma and strengthening the overall standard of care.
Ms Muthambi reaffirmed that South Africa must remain committed to improving healthcare services for people living with haemophilia. She called on all South Africans to support advocacy efforts and help raise awareness about this condition.
ISSUED BY THE PARLIAMENTARY COMMUNICATION SERVICES ON BEHALF OF THE CHAIRPERSON OF THE PORTFOLIO COMMITTEE ON HEALTH, MS FAITH MUTHAMBI.
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